Spina Bifida

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    Taxonomy Code: YF-3000.8080

    A congenital defect in the walls of the spinal canal caused by lack of union between the laminae of the vertebrae. As a result of this deficiency, the membranes of the cord are pushed through the opening forming the spina bifida tumor.

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    There are 15 matching records.
    Service NameDescriptionLocationProgramAgency
    Children's Hospital of Philadelphia - General PediatricsThe Division of General Pediatrics cares for inpatients referred for acute care at The Children's Hospital of Philadelphia and provides primary care on an outpatient basis through its Faculty Practice. The Children's Hospital of Philadelphia inpatient satellites, CHOP Connection, are located at Abington Memorial Hospital, The Chester County Hospital, Grand View Hospital and Shore Memorial Hospital. These units are operated jointly and staffed by The Children's Hospital of Philadelphia physicians. Primary care for children in West and South Philadelphia is also available through The Children's Hospital of Philadelphia's Primary Care Centers at Main Campus, University City, Cobbs Creek and South Philadelphia.PhiladelphiaChildren's Hospital of Philadelphia - Philadelphia; University CityChildren's Hospital of Philadelphia
    Children's Hospital of Philadelphia - General Pediatrics - Abington Memorial HospitalThe Division of General Pediatrics cares for inpatients referred for acute care at The Children's Hospital of Philadelphia and provides primary care on an outpatient basis through its Faculty Practice. The Children's Hospital of Philadelphia inpatient satellites, CHOP Connection, are located at Abington Memorial Hospital, The Chester County Hospital, Grand View Hospital and Shore Memorial Hospital. These units are operated jointly and staffed by The Children's Hospital of Philadelphia physicians. Primary care for children in West and South Philadelphia is also available through The Children's Hospital of Philadelphia's Primary Care Centers at Main Campus, University City, Cobbs Creek and South Philadelphia.MontgomeryCHOP Connection at Abington Memorial HospitalChildren's Hospital of Philadelphia
    Children's Hospital of Philadelphia - General Pediatrics - Chester County HospitalThe Division of General Pediatrics cares for inpatients referred for acute care at The Children's Hospital of Philadelphia and provides primary care on an outpatient basis through its Faculty Practice. The Children's Hospital of Philadelphia inpatient satellites, CHOP Connection, are located at Abington Memorial Hospital, The Chester County Hospital, Grand View Hospital and Shore Memorial Hospital. These units are operated jointly and staffed by The Children's Hospital of Philadelphia physicians. Primary care for children in West and South Philadelphia is also available through The Children's Hospital of Philadelphia's Primary Care Centers at Main Campus, University City, Cobbs Creek and South Philadelphia.ChesterCHOP Connection at The Chester County HospitalChildren's Hospital of Philadelphia
    Children's Hospital of Philadelphia - General Pediatrics - Grand View HospitalThe Division of General Pediatrics cares for inpatients referred for acute care at The Children's Hospital of Philadelphia and provides primary care on an outpatient basis through its Faculty Practice. The Children's Hospital of Philadelphia inpatient satellites, CHOP Connection, are located at Abington Memorial Hospital, The Chester County Hospital, Grand View Hospital and Shore Memorial Hospital. These units are operated jointly and staffed by The Children's Hospital of Philadelphia physicians. Primary care for children in West and South Philadelphia is also available through The Children's Hospital of Philadelphia's Primary Care Centers at Main Campus, University City, Cobbs Creek and South Philadelphia.BucksCHOP Connection at Grand View HospitalChildren's Hospital of Philadelphia
    Children's Hospital of Philadelphia - General Pediatrics - Shore Memorial HospitalThe Division of General Pediatrics cares for inpatients referred for acute care at The Children's Hospital of Philadelphia and provides primary care on an outpatient basis through its Faculty Practice. The Children's Hospital of Philadelphia inpatient satellites, CHOP Connection, are located at Abington Memorial Hospital, The Chester County Hospital, Grand View Hospital and Shore Memorial Hospital. These units are operated jointly and staffed by The Children's Hospital of Philadelphia physicians. Primary care for children in West and South Philadelphia is also available through The Children's Hospital of Philadelphia's Primary Care Centers at Main Campus, University City, Cobbs Creek and South Philadelphia.CHOP Connection at Shore Memorial HospitalChildren's Hospital of Philadelphia
    Penn State Hershey Medical Center - Spina Bifida ProgramComprehensive medical care for individuals with Spina Bifida, including testings, education and referrals.DauphinPenn State Hershey Medical CenterPenn State Hershey Medical Center
    Spina Bifida Association - Direct Patient FundDirect Patient Aid - provides up to $750 per fiscal year for medical bills related to Spina Bifida.DelawareSpina Bifida Association of the Delaware Valley - Delaware; HavertownSpina Bifida Association of the Delaware Valley
    Spina Bifida Association - Driver's EducationDriver’s Education Fund - provides a maximum of $500 for behind-the-wheel driver’s education training. DelawareSpina Bifida Association of the Delaware Valley - Delaware; HavertownSpina Bifida Association of the Delaware Valley
    Spina Bifida Association - Equipment FundEquipment Fund - provides up to $1,500 per fiscal year to purchase wheelchairs, crutches, and other adaptive devices. Please contact SBADV for a list of approved items.DelawareSpina Bifida Association of the Delaware Valley - Delaware; HavertownSpina Bifida Association of the Delaware Valley
    Spina Bifida Association - Incontinence FundIncontinence Fund - provides up to $1000 per fiscal year for incontinent supplies.DelawareSpina Bifida Association of the Delaware Valley - Delaware; HavertownSpina Bifida Association of the Delaware Valley
    Spina Bifida Association - National Event FundNational Events Fund - offers assistance of up to $500 to individuals who qualify for participation in a National level event.DelawareSpina Bifida Association of the Delaware Valley - Delaware; HavertownSpina Bifida Association of the Delaware Valley
    Spina Bifida Association of Western PABluePrints offers children with spina bifida and other related disabilities the opportunity to develop social, motor, sensory and cognitive skills by interacting with peers in a fun and stimulating environment in a play group for children ages two - five years. The program is provides a place where parents and children can interact in a play/support group setting under the careful supervision of a professional. The Gatehouse Program provides a structured, safe and supportive environment for individuals to successfully make the transition into adult life. Following high school graduation, young adults live at the Gatehouse while receiving vocational, educational, life skills and wellness training. The summer developmental camping program provides a traditional camp experience for individuals with spina bifida and related disabilities. The program combines traditional camp fun with skill development in a barrier-free atmosphere regardless of disability. The STRIVE (Skills Training and Rehabilitation for Individual Vocational Enhancement) Program assists individuals with spina bifida and other related disabilities in developing the coping and problem solving skills that will allow them to acquire and maintain employment. Serving individuals in the northern region of Allegheny County, the program provides participants with the training needed to understand their physical and cognitive strengths and weaknesses. It teaches them to develop realistic and appropriate career goals and to have an understanding of how to develop compensatory strategies in employment and community-based settings. The skills learned through STRIVE enable individuals to be more independent in career exploration, job seeking and maintaining competitive employment. The Family School Partnership emphasizes collaboration between parents and families to successfully educate the child with spina bifida. Equips parents with the information they need to advocate for the diverse needs of their child. The program serves families and school district personnel from preschool through graduation. The Adult Community Services Program supports individuals who have completed the Gatehouse program and individuals with spina bifida or other related disabilities who are living out in the community. The program also helps adults with spina bifida locate housing in the community of their choice. One option in the North Hills is the Villa, a housing complex directly supported by the SBAWP. Villa residents receive staff support in managing their own apartments while they continue to work on their educational and vocational goals. The SBAWP Wellness Program was designed specifically to support young adults with spina bifida and other related disabilities with a proactive and holistic service aimed at maintaining their health and wellness. Through coordinated and preventative care, SBAWP Wellness Coordinators help individuals manage the cognitive, physical and emotional aspects of their disability within the health care system. They work collaboratively with individuals, health care professionals, family members, caregivers and service providers on a weekly basis to ensure an exceptional level of care. AlleghenySpina Bifida Association of Western PASpina Bifida Association of Western PA
    Spina Bifida Association of Western PA - FireFly Camps and RetreatsThis summer developmental camping program offers various overnight camps and weekend retreats for children and adults with spina bifida and related disabilities. The program combines traditional camp fun with skill development in a barrier-free atmosphere regardless of disability. For many, it is an opportunity to be with friends and experience activities never thought possible. A primary focus of the program is to work on teaching health care, life management, pre-vocational, and interpersonal skills. These skills are taught indirectly through goal-oriented activities such as games, crafts, cooking and computer classes, and discussion groups. Each summer program has a specific theme with targeted goals and objectives. Personalized goal plans are also created for each participant. The individual does not need to be independent in self care routines to participate. Groups are determined based on age and interests.ButlerSummer ProgramsSummer Programs
    Spina Bifida Association - Post Secondary Education FundPost Secondary Education - offers assistance of up to $1000 to individuals pursuing college, trade school, or other specialized training. DelawareSpina Bifida Association of the Delaware Valley - Delaware; HavertownSpina Bifida Association of the Delaware Valley
    Spina Bifida Association - Subscription/ NewsletterTo receive the SBADV Newsletter and keep up-to-date on the most current information throughout our area, register as a constituent of SBADV:Click here. To sign up for news letterClick here. DelawareSpina Bifida Association of the Delaware Valley - Delaware; HavertownSpina Bifida Association of the Delaware Valley

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