|Celebrate Down Syndrome||Connects with families to help them gain inner strength so they may be their own best resource. Goals are to give support, foster friendships, and connect with other families. The meetings allow time to interact, express feelings, concerns and/or doubts. Childcare provided on-site with structured activities for children of all ages. Celebrate Down Syndrome strives to bring awareness to our community through social activities and to provide assurance and information about Down Syndrome related issues. Offers free books for new parents, social activities and educational meetings with requested speakers.||Lancaster||Celebrate Down Syndrome||Independent Support Groups|
|Children's Hospital of Pittsburgh Down Syndrome Center||Offers support and information to parents of children and adults with Down Syndrome. Connects families and other caregivers to available resources in their community. Sends informational packets to families of newborns. Clinical appointments are available for adults and children.||Allegheny||Children's Hospital of Pittsburgh Down Syndrome Center||Children's Hospital of Pittsburgh of UPMC|
|Down Syndrome Group of Erie County - Family Support||Community outreach and trainings provided for families and professionals interested in learning more about people born with Down Syndrome. They sponsor the annual Buddy Walk for the awareness, acceptance and inclusion of people who have Down Syndrome.||Erie||Down Syndrome Group of Erie County||Down Syndrome Group of Erie County|
|Down Syndrome Interest Group||Down Syndrome Interest Group of Chester County (CCDSIG) is a organization of a group of parents of children with Down Syndrome who meet for social contact and mutual support.||Chester||Down Syndrome Interest Group of Chester County - Chester; Exton||Down Syndrome Interest Group of Chester County|
|Eastern Pennsylvania Down Syndrome Center||Provides medical assessments and referrals to specialists for children and adolescents with Down Syndrome. Resource center provides the most-current information on Down syndrome and maintains a resource book with specific referrals for each county in the state. Provides training about caring for patients with Down Syndrome for pediatric and family medicine residents, therapists, nurses, and service providers. Also sponsors family social events and activities.
||Lehigh||Eastern Pennsylvania Down Syndrome Center||Eastern Pennsylvania Down Syndrome Center|
|Hopes and Dreams Foundation - The Buddy Walk||The Buddy Walk was developed by the National Down syndrome Society in 1995 to bring together a wide range of concerned individuals to reach out to friends, family and co-workers to promote awareness and inclusion for people with Down Syndrome and to raise money for research and education programs. The
Buddy Walk is a trademarked program of the National Down Syndrome Society. The Buddy Walk is a one-mile walk in which anyone can participate without special training. The walk has grown from 17 in 1995 to over 190 in 2004. More than 180,000 people from coast to coast and abroad participated this past year.||Bucks||Hopes and Dreams Foundation - Bucks; Southampton||Hopes and Dreams Foundation|
|Hopes and Dreams Foundation - The Dream Club||The Dream Club is a service developed by the Hopes and Dreams Foundation for children with disabilities ages 9 and above. The Dream Club programs bring the children together in a fun setting where they can participate in art, crafts, music, and drama. There is no charge for Dream Club participants.||Bucks||Hopes and Dreams Foundation - Bucks; Southampton||Hopes and Dreams Foundation|
|iCan Shine - Bike Camp||A program that offers children with autism, Down syndrome and other disabilities a chance to learn and experience bicycle riding.||Allegheny||Summer Programs||Summer Programs|
|National Down Syndrome Congress||Works to empower its members and all people with Down syndrome by creating a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.
||National Down Syndrome Congress||National Down Syndrome Congress|
|National Down Syndrome Society||National advocate for the value, acceptance and inclusion of people with Down Syndrome. They envision a world in which all people with Down Syndrome have the opportunity to enhance their quality of like, realized their life aspirations and become valued members of welcoming communities.
Provides information and referral via a toll-free Helpline and email service. Also produce print materials on Down syndrome including A Promising Future Together: A guide for new and expectant parents, Aging and Down Syndrome: A health and well-being guidebook, NDSS Brochure and Get to Know Me Poster and Lesson Plan. With the exception of the poster and lesson plan, all publications are available in both English and Spanish.
||National Down Syndrome Society||National Down Syndrome Society|
|Project Lifesaver||Project Lifesaver helps provide rapid response to save lives and reduce the potential for serious injury for adults and children who wander due to Alzheimer's disease, Autism, Down Syndrome, dementia and other related disorders.
People who are part of the program wear a personalized wristband that emits a tracking signal. If the person wanders off, the caregiver notifies the Project Lifesaver agency and a search and rescue team responds to the wanderer's area and starts searching with a mobile locator tracking system. Search times have been reduced from hours and days to just minutes
||Lehigh||Project Lifesaver||Project Lifesaver International|
|Project Lifesaver International||Project Lifesaver International provides police, fire/rescue and other first responders with a comprehensive program including equipment and training to quickly locate and rescue “at risk” individuals with cognitive disorders who are at constant risk to the life threatening behavior of wandering including those with Alzheimer’s disease, Autism, and Down syndrome. Project Lifesaver has over 1,300 participating agencies throughout 47 states in the U.S., Canada, and Australia, and has performed 2,880 searches over the last 15 years with no serious injuries or fatalities ever reported. Project Lifesaver provides equipment, training, certification and support to law enforcement, public safety organizations and community groups throughout the country and nation.
Project Lifesaver International provides in-depth training for law enforcement and other public safety agencies on the use of specialized electronic search and rescue equipment, technology and procedures, as well as teaching rescuers how to communicate with people afflicted with cognitive conditions, all of which are essential to the successful rescue of missing persons who wander or otherwise become lost. They certify search and rescue personnel and provide ongoing management to participating agencies.
In addition, Project Lifesaver develops public outreach programs to educate others about the issue of wandering, and they constantly work toward developing public policy and effective law enforcement response to help save lives and “bring loved ones home.”
||Project Lifesaver International||Project Lifesaver International|
|Project Lifesaver Training||Project Lifesaver International (PLI) was founded by public safety officers themselves to bring about a solution that facilitates not just the speedy return of wanderers to their families upon being found but the actual rapid location of the wanderers themselves — a strategy that greatly increases the chance that the wanderer will be found alive.
Training for a new agency includes two days of on-site instruction for up to 15 people in your agency, provided by a State Coordinator (a law enforcement professional certified by PLI to train others) or by PLI’s own staff. PLI also provides one-day training for up to six officers to be trained as instructors and re-certify staff every two years. Each new agency will also receive training on Alzheimer’s and Autism, as well as other disorders, to help when responding to a missing client.
An agency, usually the first in a state, which agrees to have certified instructors trained can then provide training for other agencies in their state and may then become the State Coordinator.||Project Lifesaver International||Project Lifesaver International|
|United Cerebral Palsy Association - Adult Services||Adult Services works to maximize an individual's independence and inclusion in the community by increasing vocational opportunities, strengthening independent living skills, and improving social competencies. Adult Services programs are available to individuals over the age of 18 with physical and developmental disabilities, and a variety of visual, hearing, speech, and learning impairments. Services are provided to adults with cerebral palsy, autism, head trauma, Down Syndrome, spinal cord injuries, mental health difficulties, a diagnosis of mental retardation, or any condition that limits a person's independence. Adult Development Program and OPTIONS as well as the Adult Training Program||Philadelphia||United Cerebral Palsy of Philadelphia - Philadelphia; Chestnut Hill||United Cerebral Palsy Association of Philadelphia and Vicinity|
|York Area Down syndrome Association||The York Area Down Syndrome Association provides education, support, and resources to individuals with Down syndrome, their families, professionals, and the community, while building public awareness and acceptance of the abilities of individuals with Down syndrome. We are a parent run organization and have no paid employees. We meet on a monthly basis. Informative guest speakers are offered periodically. In addition we have other monthly activities. Please see our calendar for upcoming events!||York||York Area Down syndrome Association||York Area Down Syndrome Association|