Medical and Health Sciences Research

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    Taxonomy Code: TR-1000.5000

    Programs that conduct basic and applied research which focuses on human diseases with the objective of improving human health through the development of vaccines, medicines and other forms of treatment.

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    There are 6 matching records.
    Service NameDescriptionLocationProgramAgency
    Families of Spinal Muscular Atrophy - Community SupportThe diagnosis of Spinal Muscular Atrophy can be confusing, scary, frustrating, pretty much the whole gamut of emotions - but you are not alone. You are now part of Families of SMA, a network of families, researchers, clinicians and other professionals who are determined to make a difference. Families of SMA is here for you at whatever level you need. We hope to provide you with information that will help you navigate through life with SMA. We are here to help connect you with other families and to provide resources to assist in the care of a family member with SMA. And we are here working together to fund the research that will lead us to a treatment and a cure for SMA. As caring parents and professionals, we can offer support and understanding when it is most needed.PhiladelphiaFamilies of Spinal Muscular Atrophy-Pennsylvania Chapter - Southeastern PA RegionFamilies of Spinal Muscular Atrophy-Pennsylvania Chapter
    Guillain-Barre Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International - Support ServicesAlthough most people recover from GBS and CIDP, the duration of the illness is unpredictable and often months of hospital care are required. Thus, both patient and family undergo the emotional trauma of an uncertain future, not knowing if and when recovery will occur. To assist patients and their families to cope with GBS/CIDP, the Foundation provides emotional support to patients and their loved ones. Support Services include: - Personal visits, when possible, by former patients to those currently in hospitals and rehabilitation centers. - Supplies literature and educational material, including a comprehensive 70-page booklet entitled "An Overview for the Layperson" so patients and families can learn what to expect during the illness, as well as Guidebooks for Caregivers, and for children with GBS. Trifolds are available in English, Spanish, Italian, French, Japanese, Hindi, Arabic, and others. - Educates the public and medical communities via sponsorship of local chapters and support groups. - Fosters and funds research into cause, treatment and other aspects of the disorder. - Directs patients with long-term disabilities to resources for vocational, financial and other assistance. - Develops national and international support groups. - Encourages financial support for community activities. - Sponsors International Educational Symposia for the medical community and general public. - Publishes The Communicator, a quarterly informational newsletter. - Advocates in Washington DC and elsewhere on issues relevent to GBS and CIDP.MontgomeryGuillain-Barre Syndrome Foundation International - Montgomery; ConshohockenGuillain-Barre Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International
    Macula Vision Research Foundation - Support Sight ProgramThe mission of SupportSight of the MVRF is to enhance the quality of life of the ever-growing population who are affected by or concerned with macular degeneration through public education programs, small support groups, the toll-free hotline (866-4-Macula) responding to the needs of patients, their families and loved ones, through question and answer sessions following public education programs, and printed and taped literature. MontgomeryMacula Vision Research Foundation - Montgomery; ConshohockenMacula Vision Research Foundation
    Muscular Dystrophy Association - ResearchMDA supports more research on neuromuscular diseases than any other private-sector organization in the world, seeking causes of, and cures and treatments for, neuromuscular disorders. MDA-funded scientists are in the forefront of cell-based therapy research and are testing potential treatments for several neuromuscular disorders. MontgomeryMuscular Dystrophy Association - Philadelphia Area Office - Delaware; BroomallMuscular Dystrophy Association - Philadelphia Area Office
    National Disease Research Interchange (NDRI) - Research ProgramsNDRI makes it easy for researchers to get the human tissues and organs they need, prepared, preserved and shipped precisely according to their specific scientific protocols, as quickly as possible, and in the largest available quantities. Our Research Programs include: - Stem Cell - provides thousands of units of adult stem cells to researchers, potentially impacting an astonishing array of diseases. - Cancer - supplies thousands of tumor samples to some of the most important cancer studies in just about every type of cancer. - Diabetes - provides human biospecimens to scientists seeking to find preventions, new treatments, and a cure for diabetes, including the support of islet cell research and clinical transplant. - Eye Research - provides 4000+ human eyes donated each year for scientists in hundreds of studies. - Epilepsy - facilitates epilepsy research with the provision of human brain tissue for epilepsy studies, satisfying a largely unfilled current need. - Genetic Research - provides family collections, medical history data, and DNA from families and individuals to genetic researchers for gene discovery. - Rare Disease - an invaluable resource that furthers the progress of rare disease research by ensuring that human biomaterials for continued study are available to scientists. - HIV Research - identifies donors with HIV and provides scientists with incredibly valuable tissue for their studies.PhiladelphiaNational Disease Research Interchange - Philadelphia; Center CityNational Disease Research Interchange (NDRI)
    Nephcure Foundation - AdvocacyYou are the voice of all NephCure families when you speak up for vital research funding or advocate for public policies that bolster the fight against these devastating diseases. Together, we form a nationwide network of people dedicated to finding the cause and cure Nephrotic Syndrome and FSGS.Chester*Main Site (Nephcure Foundation)Nephcure Foundation

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