Voluntary Health Organizations

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    The structure of the services index and definitions of the terms contained herein were originally published in A Taxonomy of Human Services: A Conceptual Framework with Standardized Terminology and Definitions for the Field by the Information and Referral Federation of Los Angeles County, Inc., 3035 Tyler Ave., El Monte, CA 91731; Copyright (c) 1983, 1987, 1991. No part of this listing of human services terms and definitions may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electrical, mechanical, photocopying, recording or otherwise without the prior written permission of the Information and Referral Federation of Los Angeles County, Inc.

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    Taxonomy Code: TD-1200.6600-900

    Nonprofit, nongovernmental agencies that are organized on a national, state or local basis and supported primarily by voluntary contributions from the public at large, which are engaged in a program of service, education and research that relates to a particular disease, condition or disability or group of diseases, conditions or disabilities. The primary activity of voluntary health organizations is to raise funds for health related research.

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    There are 88 matching records.
    Service NameDescriptionLocationProgramAgency
    ALS Association - PhiladelphiaLeading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller. ALS Association - PhiladelphiaALS Association
    Alzheimer's Association - Berks County Branch OfficeThe leading voluntary health organization for information and research on Alzheimer's Disease and dementia. Information and referral provided through website and 24 hour helpline. Also provides training in Alzheimer's care for healthcare providers. BerksAlzheimer's Association - Berks County Branch OfficeAlzheimer's Association - Delaware Valley Chapter
    Alzheimer's Association - Greater Pennsylvania Chapter, HarrisburgA health organization dedicated to: promoting research to find the cause, treatment and cure for Alzheimers disease and related dementias; providing educational programs for the public, media, health care and medical professionals; and serving as an advocate for Alzheimer's individuals and their families. Service programs include: - Physician and attorney lists - Information about community services, home care, nursing homes and assistant living for Alzheimer's individuals, Adult Day Services - Educational forums, professional and caregiver - Speakers Bureau - Caregiver 24 hour Helpline - Caregiver Support groups - Case Management DauphinAlzheimer's Association - Greater Pennsylvania Chapter - HarrisburgAlzheimer's Association - Greater Pennsylvania Chapter
    Alzheimer's Association - Lehigh Valley Branch OfficeThe leading voluntary health organization for information and research on Alzheimer's Disease and dementia. Information and referral provided through website and 24 hour helpline. Also provides training in Alzheimer's care for healthcare providers. NorthamptonAlzheimer's Association - Lehigh Valley Branch OfficeAlzheimer's Association - Delaware Valley Chapter
    Alzheimer's Association - Montgomery County Branch OfficeThe leading voluntary health organization for information and research on Alzheimer's Disease and dementia. Information and referral provided through website and 24 hour helpline. Also provides training in Alzheimer's care for healthcare providers. MontgomeryAlzheimer's Association - Montgomery County Branch OfficeAlzheimer's Association - Delaware Valley Chapter
    American Brain Tumor Association (ABTA)Provides information about brain tumors, options for treatment, research updates, and support services (including online support) to patients, their families, and medical professionals. Dedicated to eliminating brain tumors by advocating innovative research and treatment approaches. Tri-annual newsletter and copies of ABTA publications are available free of charge.550 W Bryn Mawr Ave, Ste 550, Chicago IL (American Brain Tumor Association (ABTA))American Brain Tumor Association (ABTA)
    American Cancer Society Carbon-TamaquaProvides information on different types of cancer/treatment options and raises funds to support cancer research. Annual fundraising events include a telethon, auctions, dinners and a motorcycle ride. CarbonAmerican Cancer Society Carbon-TamaquaAmerican Cancer Society
    American Cancer Society - LancasterProvides public education and patient services to residents of Lancaster County, in addition to raising funds for research, local education and patient services Patient services include: - Wig bank: Provides free wigs to patients undergoing chemotherapy and/or radiation; Can meet cosmetologist by appointment - Road to Recovery program: Offers transportation to treatment sites by volunteer drivers when no other alternative exists. Transportation is provided for radiation and chemotherapy treatments and for cancer-related bloodwork - Cancer Resource Network: An 800 number (800-ACS-2345) and website (www.cancer.org) offering 24 hour up-to-date information regarding cancer, including prevention, detection, diagnosis, treatment and referral sources for other assistance and support. -Look good, Feel better: Local Cosmetologists teach beauty techniques to women undergoing cancer treatment how to cope with appearance related side effects. Cosmetics and skin care products provided. -Reach to Recovery: One to one support program for newly diagnosed breast cancer patients.LancasterAmerican Cancer Society - Lancaster UnitAmerican Cancer Society
    American Cancer Society - Lehigh ValleyProvides information on different types of cancer and treatment options, funds research on cancer and advocates on behalf of people affected by cancer. General information on clinical trials is available online. NorthamptonAmerican Cancer Society - Lehigh ValleyAmerican Cancer Society
    American Childhood Cancer Organization - Educational and Emotional Support MaterialsProvides books, journals, a medical play kit, Cozy Port-A-Cat and Comfort kit to families who have a child who has received childhood cancer diagnosis. American Childhood Cancer OrganizationAmerican Childhood Cancer Organization
    American Cleft Palate-Craniofacial AssociationEnhances the quality of life for individuals affected by cleft lip and palate and other craniofacial birth defects. -Provides comprehensive information to educate patients, families, and professionals makes referrals to cleft/craniofacial treatment teams -Offers telephone and online counseling and support service through the Cleftline 1-800-24-CLEFT (800-242-5338) -Funds research to learn all we can about prevention and care -Provides Cleftline Teddy Bears with repaired cleft lips -Advocates for family-centered team care -Awards a minimum of three $500 college scholarships each year to young adults affected by cleft and craniofacial birth defects American Cleft Palate-Craniofacial AssociationAmerican Cleft Palate-Craniofacial Association
    American Diabetes Association, Northeastern PAFunds research to prevent, cure and manage diabetes; delivers services; provides objective and credible information; and gives voice to those denied their rights because of diabetes.NorthamptonAmerican Diabetes Association Northeastern PennsylvaniaAmerican Diabetes Association
    American Diabetes Association Philadelphia RegionProvides advocacy, information and education for adults and children with diabetes. Sponsors Family Link program, connecting families with children with diabetes. Conducts several fundraising events each year, including the following: - Step Out: Walk to Stop Diabetes - Bicycle Ride: Tour de Cure - School Walk for DiabetesPhiladelphiaAmerican Diabetes Association Philadelphia RegionAmerican Diabetes Association
    American Heart Association - LancasterPrograms offered: - Heart Power! K-2: A hands-on teaching tool for children in preschool and kindergarten to help develop positive diet and exercise habits, while stressing the importance of living tobacco free - Heart Power! 3-5, 6-8: A program for elementary school children that teaches about the circulatory system and preventing cardiovascular disease through exercise, nutrition and living tobacco free - Emergency Cardiac Care: CPR classes taught at various levels, including Basic Life Support, Advanced Cardiac Life Support and Pediatric Advanced Life Support. Call (888) 277-5463 - Heart and Stroke Risk Factor Education, Operation Heat Stroke and Operation Stroke, improving the chain of survival in the community Additional programs: - Heart Walk: A 5 mile walk held in the fall to promote walking as an excellent form of exercise, while raising money for the fight against heart disease and stroke - Kids Heart Challenge: Exercise and fundraising program held throughout the year in elementary, junior and senior high schools - Heart Ball: Fund raiser gala held each February, including dinner, dancing and silent auctions - Go Red for Women Luncheon: Held the Friday of Mother's Day weekend. Includes luncheon, auction and information The American Heart Association does not provide funds for direct patient care, with the exception of the Penicillin Project, which ensures that persons with rheumatic fever receive appropriate medication at cost. LancasterAmerican Heart Association - LancasterAmerican Heart Association - Lancaster
    American Heart Association - Lehigh Valley and Northeast PennsylvaniaProvides current information on heart disease prevention and the importance of nutrition and exercise. Advocates on issues such as; smoke-free public places, more bike and pedestrian friendly cities and towns, better nutrition and higher quality physical education in schools and affordable healthcare. Improves the quality of care for heart and stroke patients by providing training for medical professionals and educating the public about the warning signs of stroke, and providing resources for stroke survivors and caregivers. Supports heart and stroke research and disseminates medical advances and new treatment guidelines though journals, conferences and online courses. LehighAmerican Heart Association - Lehigh Valley and Northeast PennsylvaniaAmerican Heart Association
    American Kidney FundConducts health education initiatives and legislative advocacy on behalf of people with or at risk for kidney disease. Provides information on kidney disease through an internet and telephone helpline, free kidney screenings to the public and treatment-related financial assistance to kidney patients. American Kidney FundAmerican Kidney Fund
    American Lung Association in PennsylvaniaPrograms include: - Radon Awareness: Information on health effects, testing procedures and reduction methods. Radon testing kits available for purchase - Carbon Monoxide Awareness: Information on health effects, testing procedures and proper steps to take - Air Pollution Awareness: Information on asbestos, environmental (secondhand) tobacco smoke, ground-level ozone and other indoor and outdoor air pollutants - Advocacy for Lung Health: Supporting individual, community, workplace, municipal, state and federal initiatives to protect people and environment from air pollution, including support of tobacco control measures - Freedom from Smoking Classes (referral): An 8-session (7 week) program of behavior modification for smoking cessation. Provides suggestions on how to build a healthier lifestyle, including relaxation techniques and avoiding weight gain. Fee is set through participating sites (free through above web site). Participants must finalize fee and program dates through sponsoring hospital. Call ALA for info - Provides information on a residential camp for children, ages 8-13, who have asthma - Also sponsors Better Breather Club Support Group for people living with COPD - Asthma Walk fundraiser, Walk for Life and Breath fundraiser - Call Center: Trained registered nurses and respiratory therapists provide immediate and comprehensive information about specific lung-health issues such as lung cancer, chronic bronchitis, emphysema, asthma and tuberculosis. Also will provide information on topics including allergies, how to quit smoking and environmental issues. Offers physician referralsCumberlandAmerican Lung Association in PennsylvaniaAmerican Lung Association in Pennsylvania
    American Parkinson Disease AssociationGrass roots organization serving those affected by Parkinson's Disease. Provides information and resources to patients, their families, friends, doctors and other medical professionals; promotes public awareness of the disease; and sponsors research into the causes and treatment for the Disease. National Resource Center for Rehabilitation provides access to a licensed physical therapist who can answer questions and provide educational materials. Operates 62 Information and Referral Centers across the country to educate, counsel and refer patients to medical professionals. American Parkinson Disease AssociationAmerican Parkinson Disease Association
    American Parkinson Disease Association - PittsburghMission statement is "To Ease the Burden..To Find the Cure." Provides printed literature on Parkinson's disease--free of charge, referrals to movement disorder specialists in the area, and other areas in the country through referrals via coordinators.AlleghenyAmerican Parkinson Disease Association - PittsburghAmerican Parkinson Disease Association
    American SIDS InstitutePreventing sudden infant death syndrome (SIDS). Information is available online or through a 24 hour information line. American SIDS InstituteAmerican SIDS Institute
    Angel 34 FoundationVoluntary health organization advocates and supports research into pediatric cancers. Donates ICEE machines to children's hospitals, offers a pet therapy program, provides financial assistance to children with cancer and their families, awards scholarships to students entering medical studies and supports the continuing search for a cure. Angel 34 FoundationAngel 34 Foundation
    Aplastic Anemia and MDS International Foundation, Inc.Funds medical research on aplastic anemia and bone marrow failure diseases, advocates for increased federal funding of research into these diseases, promotes public awareness of bone marrow failure diseases, and educates medical professionals about causes and treatments of bone marrow failure diseases. Provides personalized support from patient educators via e-mail (help@AAMDS.org) or the toll free line. Volunteer peer support network also provides emotional support and understanding. Aplastic Anemia and MDS International Foundation, Inc.Aplastic Anemia and MDS International Foundation
    Arthritis FoundationOffers information and tools to help people live a better life with arthritis. Services include information and referral, exercise, and self-help programs. Provides public health education, pursues public policy and legislation, and conducts evidence-based programs to improve the quality of life for those living with arthritis.PhiladelphiaARTHRITIS FOUNDATIONArthritis Foundation, Eastern Pennsylvania Chapter
    Arthritis Foundation - Central PA ChapterService programs include: - Physician list - Educational material - Aquatics Program, Exercise Program and Tai Chi program - Self-help course teaches self management of arthritis - Speakers Bureau - Community education for medical professionals DauphinArthritis Foundation - Central PA ChapterArthritis Foundation - Great Lakes Region
    Arthritis Foundation - Western PAThe Arthritis Foundation, Western Pennsylvania Chapter is one of 46 chapters nationwide that serve local communities. Based in Pittsburgh (Allegheny County), the chapter covers a geographic region of 19 counties. Service programs include: - Physician list - Educational material - Aquatics Program, Exercise Program and Tai Chi program - Self-help course teaches self management of arthritis - Speakers Bureau - Community education for medical professionalsAlleghenyArthritis Foundation - Western PAArthritis Foundation - Great Lakes Region
    Asthma and Allergy Foundation of AmericaOrganization for people with asthma and allergies that offers educational programs and resources for patients, caregivers, and health professionals; develops and advocates for public policies to improve the quality of life for people with asthma and allergies; and funds research on both asthma and allergies. Asthma and Allergy Foundation of AmericaAsthma and Allergy Foundation of America
    Brain Injury Association of AmericaProvides information, education and support to assist those currently living with brain injury and their families. Advocates for polices of concern to people with brain injury. Maintains a listing of brain-injury related supports and services. Offers educational materials to both families and professionals. Brain Injury Association of AmericaBrain Injury Association of America
    Brain Injury Association of PennsylvaniaRaises awareness of brain safety through education and advocacy. Provides education and training about brain injury to medical personnel, police officers and social service agencies. Hosts educational brain safety fairs at various locations throughout the state. The Brain Injury Resource Line (BIRL) is a toll free number which provides support, compassion, and information about brain injury resources available in the caller's area (leave a message if no answer). Maintains a listing of brain injury support groups around the state. Brain STEPS school re-entry program provides training to educators and parents to make sure they understand the effects of brain injury, the resulting challenges, and the supports and interventions that will help students with brain injuries be successful in school. CumberlandBrain Injury Association of PennsylvaniaBrain Injury Association of America
    CFIDS Association of AmericaDedicated to conquering chronic fatigue syndrome (CFS), which is also known as chronic fatigue and immune dysfunction syndrome (CFIDS). Provides information and resources on CFS/CFIDS to patients, family members, caregivers, the general public and health care professionals. Supports research and public policy to advance the understanding, diagnosis, treatment and prevention of CFS. CFIDS Association of AmericaCFIDS Association of America
    Children's Tumor FoundationDedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). NF is a genetic disorder in which nerve tissue grows tumors. Children's Tumor FoundationChildren's Tumor Foundation
    Christopher and Dana Reeve Foundation-Gift of LifeTo promote the health and well-being of people living with spinal cord injuries, mobility impairments and paralysis by providing information, education and referral services. Quality of Life grants program awards grants to non-profit organizations that provide services to individuals with paralysis. Also supports research to develop treatments and cures for spinal cord injuries. Christopher and Dana Reeve FoundationChristopher and Dana Reeve Foundation
    Cooley's Anemia FoundationNational organization dedicated to advancing the treatment and cure of Cooley's anemia (also known as thalassemia). This is an inherited blood disease that affects children of Mediterranean, Asian-Indian, Afro-American, Southeast Asian and Chinese ancestry and, if untreated, is fatal. The foundation has 16 chapters throughout the US. It conducts national programs that provide medical research, patient services, and public awareness and education. Provides referrals to local medical sources and sponsors the Thalassemia Action Group (TAG), a support group for patients and their families. Publications available.330 7th Ave, Suite 900, New York NY (Cooley's Anemia Foundation)Cooley's Anemia Foundation
    Crohn's and Colitis Foundation - Information and ReferralA non-profit, volunteer-driven organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. MontgomeryCrohn's and Colitis Foundation of America - Philadelphia/Delaware Valley Chapter - Montgomery; Bala CynwydCrohn's & Colitis Foundation of America
    Crohn's & Colitis Foundation of America - Main OfficeNon-profit, research-oriented voluntary health organization dedicated to finding a cure for Crohn's disease and ulcerative colitis. Mission is to educate patients and their families, medical professionals, and the public through seminars, books, newsletters, brochures, medical forums, and public awareness programs. Website includes, doctor referral, news updates, chapter information, and online medical library and bookstore. Crohn's & Colitis Foundation of America - Main OfficeCrohn's & Colitis Foundation of America
    Cystic Fibrosis Foundation - Central PA ChapterNeeds of families of a person with Cystic Fibrosis are evaluated on an individual basis. The Foundation meets the needs or refers the family to other appropriate resources. May provide or make referrals for financial assistance in some instances. DauphinCystic Fibrosis Foundation - Central PA ChapterCystic Fibrosis Foundation - Central PA Chapter
    Cystic Fibrosis Foundation - Northeastern Pennsylvania ChapterThe leading organization in the United States devoted to cystic fibrosis. National Affiliation: Cystic Fibrosis Foundation 6931 Arlington Road Bethesda, MD 20814 301-951-4422 301-951-6378 FaxLehighCystic Fibrosis Foundation - Northeastern Pennsylvania ChapterCystic Fibrosis Foundation - Northeastern PA Chapter
    DebRA of AmericaDedicated to promoting research to find new treatments and a cure for Epidermolysis Bullosa (EB) and providing information and support for people with EB and their families.DebRA of AmericaDebRA of America
    Depression and Bipolar Support AlliancePatient-directed national organization provides scientifically based tools and information written in plain language about mood disorders. DBSA supports research to promote more timely diagnosis, develop more effective and tolerable treatments, and discover cures. The organization also works to ensure that people living with mood disorders are treated equitably. Depression and Bipolar Support AllianceDepression and Bipolar Support Alliance
    Dystonia Medical Research FoundationDedicated to serving people with all forms of dystonia, their friends and families, healthcare professionals and researchers. Provides information about dystonia, advocates on behalf of those affected by it and funds research into the causes and treatments for dystonia. Dystonia Medical Research FoundationDystonia Medical Research Foundation
    Endometriosis AssociationFree brochures in 30+ languages; free information kit. Books, DVDs, nutritional supplements available for purchase. Members have access to Crisis Caller list and Healthcare Provider list. Endometriosis AssociationEndometriosis Association
    Epilepsy Foundation Eastern PennsylvaniaVoluntary health organization that provides education, support and advocacy for people with epilepsy and their families. Programs and services include: - Informational materials - Medical, legal and mental health referrals - Adult resource services - Workshops and conferences - Children and family services - Support groups - Community education - Lending book and video library - Personal and legislative advocacy - Teen and pre-teen camp - Special events - Annual spring education conference - Young Adult RetreatPhiladelphiaEpilepsy Foundation Eastern PennsylvaniaEpilepsy Foundation Eastern Pennsylvania
    Foundation Fighting BlindnessFor a $50 annual donation, FFB offers information and referral services for affected individuals and their families as well as for doctors and eye care professionals. Also provides comprehensive information kits on retinitis pigmentosa, macular degeneration, and usher syndrome. Provide a newsletter, InFocus, and a e-newsletter, InFocus online, which presents articles on coping, research updates, and Foundation news. Both newsletters are published 3 times per year. Offers a national conference, Visions, usually held every year. Foundation Fighting BlindnessFoundation Fighting Blindness
    Hepatitis Foundation InternationalTeaches the public and hepatitis patients how to prevent, diagnose, and treat viral hepatitis, serves as advocates for hepatitis patients and the related medical community worldwide and supports research into prevention, treatment, and cures for viral hepatitis. Hepatitis Foundation InternationalHepatitis Foundation International
    Huntington's Disease Society of AmericaA voluntary health agency dedicated to providing help and hope for families living with Huntington's Disease. Provides vital support, information and educational services to improve the lives of those affected by HD, offer resources and guidance for HD families through a national network of volunteer-based chapters and affiliates as well as through HDSA Centers of Excellence for Family Services and promote and support research to find a cure for HD. Huntington's Disease Society of AmericaHuntington's Disease Society of America
    International OCD FoundationTo provide assistance to individuals with OCD and related disorders. International OCD FoundationInternational OCD Foundation
    Juvenile Diabetes Research Foundation InternationalThe leader in research leading to a cure for type 1 diabetes in the world. Juvenile Diabetes Research Foundation InternationalJuvenile Diabetes Research Foundation International
    Lehigh Valley Epilepsy Support GroupA voluntary health organization that provides education, support and advocacy for people with epilepsy and their families living in Eastern Pennsylvania. The Epilepsy Foundation Eastern Pennsylvania also promotes understanding of epilepsy/seizure disorder through a wide variety of programs presented to business, government and school communities, professional audiences and the general public. LehighLehigh Valley Epilepsy Support GroupEpilepsy Foundation Eastern Pennsylvania
    Leukemia & Lymphoma Society - Eastern PA ChapterWorld's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. MontgomeryLeukemia & Lymphoma Society - Eastern PALeukemia & Lymphoma Society - Eastern PA Chapter
    Leukemia & Lymphoma Society - Lehigh ValleyWorld's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LehighLeukemia & Lymphoma Society - Lehigh ValleyLeukemia & Lymphoma Society - Eastern PA Chapter
    Leukemia & Lymphoma Society of Central PennsylvaniaLSS supports a variety of patient services programs: - Information Resource Center staffed by social workers, RN's and health educators; Monday-Friday, 9 am-6 pm; www.lls.org - Peer support programs for patients, families and teens diagnosed with a blood cancer - Funding for blood cancer research - Patient financial aid which provides a limited amount of financial assistance to help patients with financial need who are under a doctors care for a blood cancer diagnosis. - Public health information including educational programs, teleconferences and web casts - Professional education to share the latest research advances with medical professionals through seminars, audiovisual materials and publications - Co-Pay Assistance Program: Helps patients with co-pay or health insurance payments The Central PA Chapter sponsors the following events in Lancaster County: - Light The Night Walk - Team In Training - Man and Woman of the Year - Pennies for Patients in Lancaster County schools - Family Support Group at Lancaster General Hospital DauphinLeukemia & Lymphoma Society of Central PennsylvaniaLeukemia & Lymphoma Society
    Lighthouse GuildProvides a full spectrum of integrated vision and healthcare services. Includes: - Vision Rehabilitation - Medical Services - Health Plans - Behavioral Health - Education - Adult Day Health Care - Training - Advocacy - Research - Awards - Scholarships - The Store - Adaptive Technology Resources Lighthouse GuildLighthouse Guild
    Light the NightLEUKEMIA & LYMPHOMA SOCIETY FUNDRAISINGDauphinLeukemia & Lymphoma Society (LLS)Leukemia & Lymphoma Society (LLS)
    Lupus Foundation of America - Philadelphia Tri-State ChapterNon-profit voluntary health organization dedicated to finding the cause and cure for lupus. - Provide direct financial support to research or emergency funding for qualified emergency needs related to lupus - Advocate to increase public and private support for research on lupus - Translate research finding into medically-sound information and programs - Heighten public awareness of the causes and consequences of lupus - Support individuals with lupus, their families and caregiversLupus Foundation of America - Philadelphia Tri-State ChapterLupus Foundation of America, Inc
    Man & Woman of the YearLEUKEMIA & LYMPHOMA SOCIETY FUNDRAISINGDauphinLeukemia & Lymphoma Society (LLS)Leukemia & Lymphoma Society (LLS)
    March of Dimes Central PA MarketServices provided include: - Public health education programs for hospitals, schools, businesses, clinics and the general public - Annual youth conference - Professional health education for doctors and nurses; annual health conference - Patient education - Supports research, medical services, and education locally and nationally Also provides grants to local organizations that support the March of Dimes mission. Contact March of Dimes for more information.DauphinMarch of Dimes Central PA MarketMarch of Dimes
    Muscular Dystrophy Association - Northeast PAA national voluntary health agency working to defeat muscular dystrophy and related diseases through programs of worldwide research, comprehensive services, and far-reaching professional and public health education. Accepts donations of usable medical equipment, refurbishes items and distributes them to those in need. Also provides assistance with medical equipment repairs. Clinic: Good Shepherd Rehabilitation Hospital 501 Saint John Street Allentown, PA 18103 Helps individuals cope with the physical and psychological aspects of the disease National Headquarters: Muscular Dystrophy Association 3300 E. Sunrise Drive Tucson, AZ 85718LehighMuscular Dystrophy Association - Northeast PAMuscular Dystrophy Association - Northeast PA
    National Association of Anorexia Nervosa and Associated DisordersSeeks to alleviate the problems of eating disorders, especially anorexia nervosa and bulimia nervosa through education, research and the provision of information and referral services.National Association of Anorexia Nervosa and Associated DisordersNational Association of Anorexia Nervosa and Associated Disorders
    National Center for Learning DisabilitiesProvides essential information to parents, professionals and individuals with learning disabilities, promotes research and programs to foster effective learning and advocates for policies to protect and strengthen educational rights and opportunities. National Center for Learning DisabilitiesNational Center for Learning Disabilities
    National Down Syndrome SocietyNational advocate for the value, acceptance and inclusion of people with Down Syndrome. They envision a world in which all people with Down Syndrome have the opportunity to enhance their quality of like, realized their life aspirations and become valued members of welcoming communities. Provides information and referral via a toll-free Helpline and email service. Also produce print materials on Down syndrome including A Promising Future Together: A guide for new and expectant parents, Aging and Down Syndrome: A health and well-being guidebook, NDSS Brochure and Get to Know Me Poster and Lesson Plan. With the exception of the poster and lesson plan, all publications are available in both English and Spanish. National Down Syndrome SocietyNational Down Syndrome Society
    National Eating Disorders AssociationDedicated to supporting individuals and families affected by eating disorders as well as providing information and referrals to professionals, students, and anyone else who is interested in learning more about eating disorders and NEDA. Provides a helpline with volunteers to help individuals assess their options for themselves or a loved one who may be struggling with an eating disorder. Click to Chat is also available. National Eating Disorders AssociationNational Eating Disorders Association
    National Gaucher FoundationTo support and promote research towards the cause, treatments and a cure for Gaucher disease and to meet the ever-increasing needs of individuals with Gaucher disease and their families that may include financial assistance, education and awareness and supporting legislative issues and providing outreach programs vital to the Gaucher community.National Gaucher FoundationNational Gaucher Foundation
    National Headache FoundationProviding educational and informational resources, supporting headache research and advocating for the understanding of headache as a legitimate neurobiological disease. National Headache FoundationNational Headache Foundation
    National Institute on Deafness and other Communication DisordersProvides free information on hearing, balance, smell, taste, voice, speech and language disorders. Free Publications Information for general public and professionals. National Institute on Deafness and other Communication DisordersNational Institute on Deafness and other Communication Disorders
    National Kidney FoundationA major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. Continuing Education of Health Care Professionals Expanding Patient Services and Community Resources Educating the Public Fund Raising Shaping Health Policy Supporting Research and Research Training National Kidney Foundation - Delaware ValleyNational Kidney Foundation - Delaware Valley
    National Multiple Sclerosis Society - Greater Delaware Valley Chapter - Lehigh Valley BranchHelps each person affected by MS in their area address the challenges of living with MS. Helps by raising funds for cutting-edge research, driving change through advocacy, facilitating professional education and providing programs and services that empower people with MS and their families to move their lives forward. Their staff and volunteers are dedicated to achieving a world free of MS. Through their chapter’s support services and educational programs for people living with MS and their families and friends, they help connect people in their local communities who want to do something about MS now. Offers many programs — including professional counseling and peer facilitated support groups, educational programs and seminars, referrals to neurologists and healthcare professionals, national teleconferences and internet programs, services for the homebound, and social and recreational programs to assist people with MS and their families in leading productive and fulfilling lives. Their community support helps to fund their local programs and accelerate worldwide research projects to ensure no opportunity is wasted. LehighNational Multiple Sclerosis Society - Greater Delaware Valley Chapter - Lehigh Valley BranchNational Multiple Sclerosis Society
    National Multiple Sclerosis Society - Group and DiscussionsOffers groups and discussions. Self-help groups bring people together who share common life experiences for support, education and mutual aid. Benefits of participating in a self-help group include: - Learning new information and strategies for confronting problems - Finding support from others - The opportunity to help others - Feeling empowered and more self-confident in coping with challenges National Multiple Sclerosis SocietyNational Multiple Sclerosis Society
    National Multiple Sclerosis Society - Pennsylvania Keystone ChapterHelps each person affected by MS in their area address the challenges of living with MS. Helps by raising funds for cutting-edge research, driving change through advocacy, facilitating professional education and providing programs and services that empower people with MS and their families to move their lives forward. Their staff and volunteers are dedicated to achieving a world free of MS. Through their chapter’s support services and educational programs for people living with MS and their families and friends, they help connect people in their local communities who want to do something about MS now. Offers many programs — including professional counseling and peer facilitated support groups, educational programs and seminars, referrals to neurologists and healthcare professionals, national teleconferences and internet programs, services for the homebound, and social and recreational programs to assist people with MS and their families in leading productive and fulfilling lives. Their community support helps to fund their local programs and accelerate worldwide research projects to ensure no opportunity is wasted.AlleghenyNational Multiple Sclerosis Society - Pennsylvania Keystone ChapterNational Multiple Sclerosis Society
    National Multiple Sclerosis Society - Pennsylvania Keystone Chapter - Eastern RegionalHelps each person affected by MS in their area address the challenges of living with MS. Helps by raising funds for cutting-edge research, driving change through advocacy, facilitating professional education and providing programs and services that empower people with MS and their families to move their lives forward. Their staff and volunteers are dedicated to achieving a world free of MS. Through their chapter’s support services and educational programs for people living with MS and their families and friends, they help connect people in their local communities who want to do something about MS now. Offers many programs — including professional counseling and peer facilitated support groups, educational programs and seminars, referrals to neurologists and healthcare professionals, national teleconferences and internet programs, services for the homebound, and social and recreational programs to assist people with MS and their families in leading productive and fulfilling lives. Their community support helps to fund their local programs and accelerate worldwide research projects to ensure no opportunity is wasted.LancasterNational Multiple Sclerosis Society - Pennsylvania Keystone Chapter - Eastern RegionalNational Multiple Sclerosis Society
    National Parkinson FoundationSupports Parkinson's-related research, patient care, education, training and outreach. National Parkinson FoundationNational Parkinson Foundation
    National Spasmodic Dysphonia AssociationServing the needs of individuals and families affected by spasmodic dysphonia through supportive services. . National Spasmodic Dysphonia AssociationNational Spasmodic Dysphonia Association
    National Stroke AssociationThe leading national resource on stroke and the driving force behind efforts to improve stroke prevention, treatment and rehabilitation. National Stroke AssociationNational Stroke Association
    National Tay-Sachs and Allied Diseases Association, Inc.Dedicated to providing information, support and referral services to individuals and families affected by Tay-Sachs, Canavan, GM-1, and Sandhoff diseases; as well as to the treatment, cure and prevention of these diseases. National Tay-Sachs and Allied Diseases Association, Inc.National Tay-Sachs and Allied Diseases Association
    National Tourette Syndrome AssociationDevelops and disseminates educational material to individuals, professionals and agencies in the fields of health care, education and government. Coordinates support services to help individuals and their families cope with Tourette Syndrome. Funds research that will ultimately find the cause of and cure for TS and, at the same time, lead to improved medications and treatments. National Tourette Syndrome AssociationNational Tourette Syndrome Association
    Paralyzed Veterans of AmericaWorks to maximize the quality of life for veterans and all people with spinal cord injury/dysfunction by advocating for health care, spinal cord injury/dysfunction research and education, veterans' benefits and rights, sports programs, disability rights and accessibility and removal of architectural barriers. Pennsylvania Service Office 5000 Wissahickon Avenue, Philadelphia, PA 19144Paralyzed Veterans of AmericaParalyzed Veterans of America
    Paralyzed Veterans of America - Operation PAVEOperation PAVE (Paving Access for Veterans Employment is a Paralyzed Veterans of America's vocational rehabilitation program, supports America’s paralyzed veterans in their search for good jobs and meaningful careers while helping employers strengthen their workforce with hard-working, gifted employees. Many of America’s 44,000 paralyzed veterans are unemployed. Research and clinical studies have shown that providing an individual with a vocational focus is critical to their successful transition to living with paralysis. Access to education and career opportunities is essential to boost quality of life, reduce chronic health issues and improve the financial stability of veterans and their families. Traditional vocational rehabilitation models have been ineffective in preparing our nation’s paralyzed and disabled veterans to reenter the workforce and remain there. That’s why Paralyzed Veterans’ is working to overcome the vocational challenges that face veterans living with spinal cord injuries, and all persons with disabilities, at our six vocational rehabilitation centers located across the country. At each, PAVE counselors work hand-in-hand with the veteran, medical staff, PVA’s national service officers and physical therapists to:
    • Explore career options early on in a paralyzed veteran’s medical rehabilitation,
    • Assist veterans to find the appropriate educational opportunities, job training, skill improvements, etc.,
    • Connect veterans to a network of hiring employers.
    Paralyzed Veterans of AmericaParalyzed Veterans of America
    Parkinson's Disease FoundationRaises funding for research on Parkinson's Disease; provides education and information about the disease; and advocates on behalf of, and in collaboration with, people with Parkinson's, their families and caregivers. Parkinson's Disease FoundationParkinson's Disease Foundation
    Patient AidServes children and adults diagnosed with leukemia, lymphoma, Hodgkin's Disease, and myleoma and works with families as well. Provides patient financial aid, advocacy, information and referral, educational materials, and patient and family support groups, including First Connection, which will match a newly diagnosed patient with a survivor. Sponsors a variety of fundraising opportunities including marathons, triathalons, and walks.1311 Mamaroneck Ave, Suite 310, White Plains NY (Patient Aid)Leukemia and Lymphoma Society
    Pediatric Cancer Foundation of the Lehigh ValleySupports children with cancer and their families, enabling them to live their lives to the fullest through education, workshops, networking and support groups. LehighPediatric Cancer Foundation of the Lehigh ValleyPediatric Cancer Foundation of the Lehigh Valley
    Prader-Willi Syndrome Association (USA)An organization of families and professionals working together to promote and fund research, provide education and offer support to enhance the quality of life of those affected by Prader-Willi syndrome.Prader-Willi Syndrome Association (USA)Prader-Willi Syndrome Association (USA)
    Retinoblastoma InternationalSupporting education, clinical care, research, early diagnosis and awareness of retinoblastoma. Retinoblastoma InternationalRetinoblastoma International
    Scoliosis AssociationA support and information organization open to all. Provides information about treating scoliosis, helps fund research on spine problems and helps those diagnosed with the disease connect with others through support groups, conferences and publications.Scoliosis AssociationScoliosis Association
    Sickle Cell Disease Association of AmericaSCDAA and its member organizations engage in research, build awareness of sickle cell disease (SCD) and related conditions, provide services such as genetic testing and counseling and offer psychosocial support for individuals and families impacted by SCD. SCDAA is National Coordinating and Evaluation Center (NCEC) for the Sickle Cell Disease and Newborn Screening Program. SCDAA also sponsors scholarships for people affected by SCD or who are interested in a career in SCD treatment and research. Sickle Cell Disease Association of AmericaSickle Cell Disease Association of America
    Sjögren's Syndrome FoundationDedicated to providing the most up-to-date information about Sjogren's syndrome to patients and healthcare providers. Sjögren's Syndrome FoundationSjögren's Syndrome Foundation
    Sudden Infant Death (SIDS) and Sudden Unexpected Infant Death (SUID) Education, Research, and AdvocacyA national, non-profit organization dedicated to promoting infant health and survival during the prenatal period through age 2 with programs of research, education, and advocacy, while at the same time providing compassionate grief support to those affected by the death of an infant. First CandleFirst Candle
    Susan G. Komen for the CureKomen for the Cure disseminates information on breast cancer prevention and treatment, implements community health programs to ensure care for underserved women and raises funds for breast cancer research through events like the Susan G. Komen Race for the Cure Series. Philadelphia Affiliate The Sheridan Building 125 South Ninth Street, Suite 202 Philadelphia, PA 19107 215-238-8900 215-238-1419 Fax info@komenphiladelphia.orgSusan G. Komen for the CureSusan G. Komen for the Cure
    TLC Foundation for Body-Focused Repetitive BehaviorsImproving the lives of people suffering with trichotillomania (hair pulling), skin picking and related body-focused repetitive disorders. TLC Foundation for Body-Focused Repetitive BehaviorsTLC Foundation for Body-Focused Repetitive Behaviors
    Turner Syndrome Society of the United StatesSupport for persons touched by Turner syndrome. Turner Syndrome is caused by complete or partial absence of the second sex chromosome. Turner Syndrome Society of the United StatesTurner Syndrome Society of the United States
    Urology Care FoundationInformation and research on diseases of the male and female urinary tract and the male reproductive organs. Urology Care FoundationUrology Care Foundation

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