Personal Health Care Advocate Services

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    The structure of the services index and definitions of the terms contained herein were originally published in A Taxonomy of Human Services: A Conceptual Framework with Standardized Terminology and Definitions for the Field by the Information and Referral Federation of Los Angeles County, Inc., 3035 Tyler Ave., El Monte, CA 91731; Copyright (c) 1983, 1987, 1991. No part of this listing of human services terms and definitions may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electrical, mechanical, photocopying, recording or otherwise without the prior written permission of the Information and Referral Federation of Los Angeles County, Inc.

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    Taxonomy Code: LH-6300.6550

    Programs that help people navigate through the maze of doctors' offices, clinics, hospitals, outpatient centers, insurance and payment systems, patient-support organizations and other components of the health care system with the objective of supporting timely delivery of quality care and ensuring that patients, survivors and families are satisfied with their encounters with the health care system. Personal health care advocates are trained health care workers, often nurses, or volunteers familiar with the health care system who work independently of any health care institution. They help patients identify specialists, coordinate appointments with providers to assure timely delivery of diagnostic and treatment services, provide "cheat sheets" of questions, and lay out the choices patients have in plain English. They may also ensure that appropriate medical records are available at scheduled appointments, accompany patients to medical appointments, arrange language translation or interpretation services, facilitate financial support and help with paperwork, negotiate insurance claims, arrange transportation and/or child/elder care, provide access to clinical trials and facilitate linkages to follow-up services. Some programs contract with employers to serve as personal advocates for employees who are ill. Others work exclusively with individuals who have specific illnesses, e.g., cancer.

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    There are 28 matching records.
    Service NameDescriptionLocationProgramAgency
    Brain Injury Association of Pennsylvania - Pre-Enrollment Assistance ProgramPre-enrollment assistance is a service that helps individuals with Traumatic Brain Injury (TBI) and their family members apply for brain injury services offered in the Commonwealth of Pennsylvania. The Brain Injury Association of Pennsylvania provides Pre-enrollment Assistance to help individuals with TBI enroll in the Department of Health’s Head Injury Program and/or other brain injury services offered in the Commonwealth. The Association is available to assist individuals in their home, community, or hospital. The Association’s Pre-enrollment Assistance Coordinators will provide information about the Head Injury program as well as other programs available in Pennsylvania such as the COMMCARE Waiver, the OBRA Waiver, the Office of Vocational Rehabilitation programs and other community based services. will help individuals obtain and complete the paperwork needed to become enrolled in the Head Injury Program or other brain injury services. These Coordinators will also: - Assist with getting medical records. - Assist individuals and family members in identifying the best resources and programs to meet rehabilitation needs. - Assist with getting a completed Physician Statement. - Assist in choosing a Head Injury Program rehabilitation provider for the assessment. - Help make transportation arrangements needed.CumberlandBrain Injury Association of PennsylvaniaBrain Injury Association of Pennsylvania
    Client Assistance Program (CAP)The Pennsylvania Client Assistance Program (CAP) helps people who are seeking services from the Office of Vocational Rehabilitation, Blindness and Visual Services, Centers for Independent Living and other programs funded under federal law. It provides you with information and advice about rehabilitation programs, advises you of your legal rights and responsibilities, helps you resolve problems that may arise while you are seeking services from rehabilitation programs, and also assists you in the pursuit of administrative and legal remedies to protect your rights.DauphinCAP Harrisburg OfficePennsylvania Client Assistance Program (CAP)
    Erie County Veterans Affairs Medical Center - Women Veterans Health ProgramPromotes health, welfare, and dignity of women Veterans and their families by ensuring access to timely, sensitive, quality health care. The Women Veterans Health Program connects women Veterans to health care specifically designed around women's unique needs. The Women Veteran Program Manager is available as an advocate, adviser and navigator to connect women Veterans with the right services - including primary care, urgent care, gender specific care, and mental/behavioral health care.ErieErie County Veterans Affairs Medical CenterErie Veterans Affairs Medical Center
    Guillain-Barre Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International - Support ServicesAlthough most people recover from GBS and CIDP, the duration of the illness is unpredictable and often months of hospital care are required. Thus, both patient and family undergo the emotional trauma of an uncertain future, not knowing if and when recovery will occur. To assist patients and their families to cope with GBS/CIDP, the Foundation provides emotional support to patients and their loved ones. Support Services include: - Personal visits, when possible, by former patients to those currently in hospitals and rehabilitation centers. - Supplies literature and educational material, including a comprehensive 70-page booklet entitled "An Overview for the Layperson" so patients and families can learn what to expect during the illness, as well as Guidebooks for Caregivers, and for children with GBS. Trifolds are available in English, Spanish, Italian, French, Japanese, Hindi, Arabic, and others. - Educates the public and medical communities via sponsorship of local chapters and support groups. - Fosters and funds research into cause, treatment and other aspects of the disorder. - Directs patients with long-term disabilities to resources for vocational, financial and other assistance. - Develops national and international support groups. - Encourages financial support for community activities. - Sponsors International Educational Symposia for the medical community and general public. - Publishes The Communicator, a quarterly informational newsletter. - Advocates in Washington DC and elsewhere on issues relevent to GBS and CIDP.MontgomeryGuillain-Barre Syndrome Foundation International - Montgomery; ConshohockenGuillain-Barre Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International
    Maternal and Child Health Consortium - Advocacy ProgramProvides improved access to high-quality health care services for at-risk families in Chester County. Needs Addressed: - Infant mortality; - Low birth weight; - Lack of prenatal care; - Smoking cessation; - Alcohol abuse; - Mental health; - Dental hygiene; - Health insurance; - Linguistic access to care; - Medical transportationChester*Main Site (Maternal and Child Health Consortium)Maternal and Child Health Consortium
    Mazzoni Center - Medical CareThe Community Health Center at Mazzoni Center offers compassionate, comprehensive primary health care services focusing on the needs of lesbian, gay, bisexual, and transgender individuals. With our own caring, professional staff, and through our partnership with Thomas Jefferson University’s Department of Family and Community Medicine, we are able to meet the growing health care demands of Philadelphia’s LGBT communities. PhiladelphiaMazzoni Center - Philadelphia; South PhiladelphiaMazzoni Center
    Nursing CareA certified nurse practicioner helps patients learn self-care activities such as bladder management. For many patients, these activities are stepping stones to a more independent lifestyle. Other nursing services include patient and family education, patient advocacy, and coordination of services available at the Center and in the community.718 Teaneck Rd, Ground Floor, Teaneck NJ (Nursing Care)Bernard W. Gimbel MS Comprehensive Care Center
    PA Elks Home Service - Allegheny CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.AlleghenyPA Elks Home Service - Allegheny CountyPennsylvania Elks Home Service
    PA Elks Home Service - Beaver CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.BeaverPA Elks Home Service - Beaver, Butler, LawrencePennsylvania Elks Home Service
    PA Elks Home Service - Bradford, Potter, TiogaProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.PotterPA Elks Home Service - Bradford, Potter and TiogaPennsylvania Elks Home Service
    PA Elks Home Service - Butler CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.ButlerPA Elks Home Service - Beaver, Butler, LawrencePennsylvania Elks Home Service
    PA Elks Home Service - Cameron, Clearfield, Elk, Jefferson, McKeanProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.ElkPA Elks Home Service - Cameron, Clearfield, Elk, Jefferson, McKeanPennsylvania Elks Home Service
    PA Elks Home Service - Clarion, Crawford, Forest, Mercer, VenangoProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.MercerPA Elks Home Service - Clarion, Crawford, Forest, Mercer, VenangoPennsylvania Elks Home Service
    PA Elks Home Service - Erie and Warren CountiesProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.EriePA Elks Home Service - Erie and Warren CountiesPennsylvania Elks Home Service
    PA Elks Home Service - Fayette CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, informFayettePA Elks Home Service - Fayette, Greene, WashingtonPennsylvania Elks Home Service
    PA Elks Home Service - Greene CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.GreenePA Elks Home Service - Fayette, Greene, WashingtonPennsylvania Elks Home Service
    PA Elks Home Service - Lawrence CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.LawrencePA Elks Home Service - Beaver, Butler, LawrencePennsylvania Elks Home Service
    PA Elks Home Service - Mercer CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.MercerPA Elks Home Service -Mercer CountyPennsylvania Elks Home Service
    PA Elks Home Service - Washington CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: in-home service coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.WashingtonPA Elks Home Service - Fayette, Greene, WashingtonPennsylvania Elks Home Service
    PA Elks Home Service - Westmoreland CountyProvides support and advocacy services to individuals of any age who have a developmental disability. Services are provided by a nurse and/or medical care coordinator in the client's home. Types of assistance provided: service care coordination, information and referral, educational and legal advocacy, home care instruction, health care liaison services, and emotional support.WestmorelandPA Elks Home Service - Westmoreland CountyPennsylvania Elks Home Service
    Pathways - PA Elks Home Service ProgramA registered nurse provides services to persons who have developmental disabilities. These disabilities include, but are not limited to, cerebral palsy, epilepsy, muscular dystrophy, spina bifida, speech, hearing, and visual disorders.WashingtonPennsylvania Elks Home Service ProgramPathways of Southwestern Pennsylvania
    Pennsylvania Client Assistance Program (CAP)The Pennsylvania Client Assistance Program (CAP) helps people who are seeking services from the Office of Vocational Rehabilitation, Blindness and Visual Services, Centers for Independent Living and other programs funded under federal law. It provides you with information and advice about rehabilitation programs, advises you of your legal rights and responsibilities, helps you resolve problems that may arise while you are seeking services from rehabilitation programs, and also assists you in the pursuit of administrative and legal remedies to protect your rights.PhiladelphiaPennsylvania Client Assistance Program (CAP) - Philadelphia; Center CityPennsylvania Client Assistance Program (CAP)
    PFI Children's ServicesPFI members are family members and others concerned about children that receive or should receive services from any system of care, such as mental health, drug and alcohol, children and youth, foster care, juvenile justice, education, and so many more. Armstrong*Main Site (Pennsylvania Families Incorporated)Pennsylvania Families
    SERVICESBerksPATIENT CARE ADVOCATESPatient Care Advocates
    Southeast Asian Mutual Assistance Associations Coalition (SEAMAAC) - Health & Social ServicesThe Health Department Staff supports SEAMAAC's mission by continuing to serve refugee and immigrant families and communities to overcome linguistic and cultural barriers in order to improve the quality of their lives through education such as employment support, digital literacy, naturalization assistance, public benefits, health insurance, domestic violence, ESL, health promotion, information and referral, case management, advocacy, community programs, and collaboration with other health care and social service providers.PhiladelphiaSoutheast Asian Mutual Assistance Associations Coalition, Inc. (SEAMAAC) - Philadelphia; South PhiladelphiaSoutheast Asian Mutual Assistance Associations Coalition (SEAMAAC)
    Vision for Equality - Advocacy ServicesWe provide a free, independent link for individuals who live in Philadelphia and receive or require MR services. Our focus is on assuring that the rights of people receiving services are protected and they are treated with dignity and respect. We want to empower people and their families to advocate for themselves. The services we provide are. . . - Advocate, monitor and take action to assure personal rights - Act as an impartial source of assistance for conflict resolution - Evaluate the adequacy of policies, procedures and services - Provide individual training and consultation - Referral for legal information and servicesPhiladelphiaVision for Equality, Inc - Philadelphia; ChinatownVision for Equality
    Women's ServicesProvides WSCHAT, Shelter, Counseling, Advocacy, Medical Advocacy Project, Education and Outreach, and also Community Gardens.CrawfordWomen's Services - MeadvilleWomen's Services
    Women's Services - Titusville - Medical AdvocacyImmediate in-person support to sexual assault and domestic violence survivors receiving medical care. Medical Advocacy for victim of sexual and domestic violence. Provide training for health care providers to improve their response to domestic and sexual violence victims.Assist companies and organizations with drafting and implementing workplace domestic violence policies and procedures. CrawfordWomen's Services - TitusvilleWomen's Services

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