Guillain-Barre Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International - Support Services

Guillain-Barre Syndrome Foundation International - Montgomery; Conshohocken


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Data Provided By
2-1-1 SEPA 2-1-1 SEPA - 2-1-1 SEPA
General Information
Description of ServiceAlthough most people recover from GBS and CIDP, the duration of the illness is unpredictable and often months of hospital care are required. Thus, both patient and family undergo the emotional trauma of an uncertain future, not knowing if and when recovery will occur. To assist patients and their families to cope with GBS/CIDP, the Foundation provides emotional support to patients and their loved ones.
Support Services include:
- Personal visits, when possible, by former patients to those currently in hospitals and rehabilitation centers.
- Supplies literature and educational material, including a comprehensive 70-page booklet entitled "An Overview for the Layperson" so patients and families can learn what to expect during the illness, as well as Guidebooks for Caregivers, and for children with GBS. Trifolds are available in English, Spanish, Italian, French, Japanese, Hindi, Arabic, and others.
- Educates the public and medical communities via sponsorship of local chapters and support groups.
- Fosters and funds research into cause, treatment and other aspects of the disorder.
- Directs patients with long-term disabilities to resources for vocational, financial and other assistance.
- Develops national and international support groups.
- Encourages financial support for community activities.
- Sponsors International Educational Symposia for the medical community and general public.
- Publishes The Communicator, a quarterly informational newsletter.
- Advocates in Washington DC and elsewhere on issues relevent to GBS and CIDP.
LocationMontgomery
Geographical AreaCounties: Montgomery; States: PA; Countries: USA
Intake ProcedureNot Available
 
Fees or Charges
Fee AmountsNot Available
 
Contact Information
 
Physical Site Address 1 104 1/2 Forrest Avenue
Physical Site City, State, Zip Narberth, PA 19072
Mailing Address 1 PO BOX 262
Mailing City, State, Zip Wynnewood, PA 19096
Main Phone 610-667-0131
 
 
Affiliated Agency, Programs, and Services
Affiliated Agency: Guillain-Barre Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International
Affiliated Program: Guillain-Barre Syndrome Foundation International - Montgomery; Conshohocken
This Service: Guillain-Barre Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International - Support Services
 
Taxonomy Postings
Posted to Categories: Disabilities and Health Conditions (YF)
Friendly Visiting (PH-1400.1900-230)
Health/Disability Related Support Groups (PN-8100.3000)
Health Supportive Services (LH)
Media Materials (TJ-6500.5000)
Medical and Health Sciences Research (TR-1000.5000)
Newsletters (TJ-6500.6000)
Personal Health Care Advocate Services (LH-6300.6550)
Printed Materials (TJ-6500.6700)
Research Funds (TB-0700.2200-700)
Workshops/Symposiums (TJ-6500.9500)