Service Search Results

Families of Spinal Muscular Atrophy - Community Support

215-605-7856 · Philadelphia, PA, 19118 · Map

The diagnosis of Spinal Muscular Atrophy can be confusing, scary, frustrating, pretty much the whole gamut of emotions - but you are not alone. You are now part of Families of SMA, a network of families, researchers, clinicians and other…


Guillain-Barre Syndrome/Chronic Inflammatory Demyelinating Polyneuropathy Foundation International - Support Services

610-667-0131 · 104 1/2 Forrest Avenue, Narberth, PA, 19072 · Map

Although most people recover from GBS and CIDP, the duration of the illness is unpredictable and often months of hospital care are required. Thus, both patient and family undergo the emotional trauma of an uncertain future, not knowing if and…


Muscular Dystrophy Association - Research

610-325-5758 · 600 Reed Road , Broomall, PA, 19008 · Map

MDA supports more research on neuromuscular diseases than any other private-sector organization in the world, seeking causes of, and cures and treatments for, neuromuscular disorders. MDA-funded scientists are in the forefront of cell-based therapy research and are testing potential treatments…


Nephcure Foundation - Advocacy

866-637-4287 · 15 Waterloo Avenue, Berwyn, PA, 19312

You are the voice of all NephCure families when you speak up for vital research funding or advocate for public policies that bolster the fight against these devastating diseases. Together, we form a nationwide network of people dedicated to finding…

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