Service Search Results

DebRA of America

212-868-1573 · 16 East 41st Street, New York, NY, 10017 · Map

Dedicated to promoting research to find new treatments and a cure for Epidermolysis Bullosa (EB) and providing information and support for people with EB and their families.…

Details

Families of Spinal Muscular Atrophy - Community Support

215-605-7856 · Philadelphia, PA, 19118 · Map

The diagnosis of Spinal Muscular Atrophy can be confusing, scary, frustrating, pretty much the whole gamut of emotions - but you are not alone. You are now part of Families of SMA, a network of families, researchers, clinicians and other…

Details

National Tay-Sachs & Allied Diseases Association (NTSAD)

800-906-8723 · 2001 Beacon St, Boston, MA, 02135 · Map

Dedicated to the treatment and prevention of Tay-Sachs, Canavan, and related diseases, and to provide information and support services to individuals and families affected by these diseases, as well as the public at large.…

Details
Displaying 1 - 3 of 3 results