Families of Spinal Muscular Atrophy-Pennsylvania Chapter

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Data Provided By
2-1-1 SEPA 2-1-1 SEPA - 2-1-1 SEPA
General Information
Description of AgencyFamilies of Spinal Muscular Atrophy is dedicated to creating a treatment and cure by:
- Funding and advancing a comprehensive research program;
- Supporting SMA families through networking, information and services;
- Improving care for all SMA patients;
- Educating health professionals and the public about SMA;
- Enlisting government support for SMA;
- Embracing all touched by SMA in a caring community.
Our vision is a world where Spinal Muscular Atrophy is treatable and curable.
Contact Information
Contact's NameKaren McRory-Negrin
Contact's PositionPresident
Contact's Phone866-647-8113
Contact's Emailpennsylvania@fsma.org
Physical Site City, State, ZipPhiladelphia, PA 19118
Mailing Address 1925 Busse Road Elk
Mailing City, State, ZipGrove Village, Illinois 60007
Main Phone215-605-7856
Web Addresshttp://www.fsma.org
Director Information
Director's NameKaren McRory-Negrin
Director's PositionPresident
Director's Phone866-647-8113
Affiliated Programs and Services
This Agency: Families of Spinal Muscular Atrophy-Pennsylvania Chapter
Affiliated Programs: Families of Spinal Muscular Atrophy-Pennsylvania Chapter - Southeastern PA Region
Affiliated Services: Families of Spinal Muscular Atrophy - Community Support